bloviation & the sacrificial lamb

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bloviating babble bubbles

I learned this new word from my friend Rick. I like it. It has a robust movement to its physical form, flow and force. It sounds and feels like thick copious slimy globules arising from a pit of bubbling sludge. This word has a sensorial constitution that matches its meaning. Thank you, Rick!

“Bloviation” – such a proliferate and aggressively dominating activity in the field of Autism and Neurodiversity. Autism is a trendy topic these days, isn’t it? Everyone – from the housewife ‘AutismMom’ to the Professor in Psychiatry, and the outright quacks touting ‘cures’ and ‘healing touches’ mushrooming like unbridled viruses in between – seems to be dancing vigorously around the jolly campfire of Autism.The word makes me think of the many (I have lost count now, it is a long and wearying list) instances of having to silently endure protracted lectures, workshops, conversations, discussions, seminars, forums, conferences etc where non-autistic / neurotypical, so-called ‘experts in the field’ (with ‘decades of experience’ working with countless autistic persons, of course) blather on and on, expounding theories constructed out of little or no insights from actual lived-experiences, confidently spreading erroneous or inaccurate ideas and information, without due citations from progressive science or quoting from old and outdated studies, musing in hyped-up dramatic tones, and performing plastic rituals that ooze tokenism… Continue reading

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layers

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Tumultuous ocean, churning depths. Underneath pomp, ceremonious circus, lies dark churning death. Extirpating the soul inside writhing grief, bursting through blessed gratitude too copiously applied. Such ponderous agony, ‘neath layer upon layer of colourful luxury.

Executive dysfunction is a very real phenomenon – not to be scoffed at. The veneer of steadfastness belies gritted teeth, foaming nausea, weeping silently, hapless, atop mighty pedestal. Who sets the heights, lengths, and breadths for performativity? The Autistic in a constant state of unstable flux – crushed, tossed, fluffed, buoyed, then crammed into discomforting contortions – seeks determinedly for clemency of space, breathing in every small fleeting moment, as if a last and final breath.

Too much struggle brings chaos to sensory reception – hyper senses become all the more acute, but yet bizarre in rhythmic jaggedness. The brain seems to switch off some signals, while others hurtle along as if out of control. A multi-dimensional existence, so markedly conflicting, it is a wonder that there are not far more collisions and collapses.

Demons screaming at the door, thinly veiled agony that nobody sees, nor ought they to be cognisant of in case of unknown, volatile consequences.

monachopsis

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Wriggling… awkward shifting, shuffling… navigating frothy nausea… think, dank fog…

How to craft Clement Space inside a constantly assaultive alienation? Minuscule foci. Small things. Split-second moments. Carpe diem! Each tiny aperture is a precious molecule.

Lucy.

Home-cooked nosh.

Friendship.

Music.

Art.

Goodness.

Kindness.

Droplets of mercy and grace notes of consideration, respect and gentleness. These all are Clement Spaces, in the midst of monachopsis.

crush

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I can literally hear it, the crunching, fragments rubbing against one another, breaking, jostling, resisting until they break yet again into smaller and smaller composites. The soul is an amazing, elastic creature, yet so fragile in its dichotomous existence. Crushed, overridden, derided, mocked, flung from one extreme to another, the dissonant chromaticism so excruciating, a wordless silent scream issues forth, travelling through time and space into the vast nothingness, pain with an ominous fermata riding mercilessly atop. Continue reading

cockroach

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Autism Awareness Month is going to sweep over us again, like a nauseating sludge – engulfing, choking, terrorising.

Awareness? Just like the cockroach in the room that one becomes aware of, that’s as far as it goes, this ‘awareness’ exercise. And autistic persons are being treated accordingly.

Parents, Siblings, Teachers, Peers, Autism Organisations… the list goes on… and round and round in dizzying concentric circles…

You write books detailing my vulnerabilities, my meltdowns, telling the world how terribly inept I am, using my dirt and mess as stark contrasting juxtaposition to your shining, glittery ‘suffering’. You can be you, this is you, this is how you deal with things, this is how you talk, this is how you react, this is just what is, so take it or leave it, but I cannot be me, because you are feeding me, housing me, and so you own my existence.

You kill me, it is murder, but because I am autistic, you become a hero instead, and the media is in a pity-party frenzy, not for me, but for you.

Do I even realise how stressed you are, having to care for my every need? Oh yes, I do. I am aware of much more than you care to even know about me. But what I think and how I feel are not at all important to you.

When autistic people protest, you tell us: Stop the drama!

When I try to explain myself to you, you tell me: Stop arguing!

When autistic people ask to be paid for work done, you tell us: Stop making demands, we ought to be grateful that you are going to great lengths to organise events on our behalf!

When I try to share my hopes and dreams, you mock me: Stop being ridiculous! You can’t even take care of yourself, what are you talking about?

Is my voice so broken? Are my words so devoid of sense? Is my Beingness so utterly despicable or laughable that you must use puzzle pieces to symbolise me? Or are you just not wanting to know my thoughts, not interested at all in who I am, because YOU are all there is and I simply should not exist? Without you, I am nothing. I cannot tie my own shoelaces. I cannot earn enough money to feed myself. Or… I cannot even feed myself. So I have nothing valuable to say. It is Autism Awareness Month, and you are making all the awareness on my behalf.

Cockroach in the Room. I am already much aware that you are aware of me. Awareness is a behemoth – overwhelming, overpowering, tyrannical – no room for negotiation, not even gentle co-existence. The Autistic is persona non grata. Deemed useless, hapless in the swirling vortex of Awareness.

Bring out the cockroach spray. Get the brooms ready.

We do not need more awareness, really, do we? We already are your filthy little cockroaches in the pristine normative room. And you are swatting and spraying at us every single day anyway. Let’s just do away with the pretext, shall we? Scrap Autism Awareness Month. We’ve been aware of your awareness for a very long time already.

deadweight

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Betrayal is a deadweight in the gut. Tastes like mixture of rancid milk and filth riddled mud. Smells like vomitus after a rowdy night. Not your own. That of someone else. Sickly sticky, viscous, slimy mottled slush all over your beautiful brand new silk scarf. And lingering on and on, churning chaos in the delicate ecology of your mind.

trap

A little sparrow is trapped inside a corner in a large human-purposed shopping mall. It flies around looking for a way out, but to no avail.

My senses connect with the bird in its distress and anxiety, I feel a tingling in my scalp, shortness of breath and tightness in muscles around ribcage. Nausea creeps in before I know it. The taste of my orange juice at the back of my throat has turned into a vile, sickly yet sharp dry metallic-sour taste, like acid burning the sensitive mucosa around my throat. Dryness is setting in and I must remind myself to swallow and breathe deeply.

The poor bird. My mind is working out ways to capture the bird and take it outside. But I do not have a shawl or towel with me, and it is flying too frantically anyway.

The room is tossing and turning in concentric circles around me, and the soundscape of human voices and piped pseudo-jazz music is slowly distorting in my brain into a muffled, slow-motion eerie kaleidoscope of dark purple colours and rancid vomitus.

And the hapless bird continues to fly, round and round, across, up and down.

The humans inhabiting the space, dotted around the room at small square tables, are all too engrossed in either their mobile phones or social chatter. Not a single person averse their gaze to look at the sparrow, not a single expression of concern. They share no empathic resonance with this sorry, desperate creature.

Soon, it will become too exhausted and maybe even crushed by the impact of smashing against windows, and will just fall to the ground and die. A slow, anxious, fear-filled death.

Just a sparrow? Not to me.

A small entity exuding overwhelming pain, confusion and wretchedly forlorn fear. Screaming fear, even. Fluttering. Flapping. Smashing. Falling. Rising. Da capo. Until there is strength no more. Not a twitter. No time and mental space to cry out. Just white hot futile determination. And then, there is silence and life is spent.

My heart feels squeezed tightly like a wrinkled old orange.

Heavy with sadness.

Overwhelmed by elemental empathy.

——

(Shop staff have become aware of the sparrow. Let’s hope something can be done to help the poor creature.)

anxiety at the BIG Anxiety

Big anxiety at The BIG Anxiety Festival!

Some of this narrative was introduced in my previous post, about Food Markers, but this ramble here is a kind of variation on the theme, from a different angle.

This 2017 working trip has been fraught with dramatic ups and downs, and here’s my as-brief-as-possible review of the Grand Experience, months afterwards. Beware, ye grammar-sticklers, I do move rapidly between tenses, because I am unfolding the unfolding as I am experiencing it, in the now, in the then, and in the next. And that, too, is my Autistic Bunny Authentic Experience-ing. Continue reading