autism beware

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When I grow too old to dream, I’ll have you to remember.

I’ve been musing on a strange (to me) phenomenon lately. It wasn’t so long ago (well, maybe some twenty years or more?) when I remember I used to be acutely aware of time, space and situation, so much so that my directional radar was sought after by family and friends. Road navigation, finding cars in a massive and crowded car park, locating shops, remembering where we had meandered from, through and telling people where to go.

Then, unbeknownst to me, I slowly morphed into a creature with no sense of direction, no idea where my body in space is positioned, needing to touch the handrails while stumbling and wobbling up and down stairs (the creaking comes from arthritic knees), unable to figure out where we’d parked the car, and going round in circles with absolutely no memory of having hurtled through time and space. Continue reading

spiky spots

I have just spent two full days in a hothouse setting trying to learn a skill that I feel quite hopelessly incapable of mastering because some key elements require a high level of social agility which my autistic embodiment just cannot muster, try as I might. Sitting in my chair and trying to look engaged with the subject matter while weaving in and out of lucidity was about all I could achieve. My brain felt broken while my body was hollering unhappy slogans. It’s the kind of scenario where people who don’t know me well would look at me, incredulous, and say, “But you have a PhD, how can you not understand such simple concepts?” Um… well… You see, it’s not the concepts that I don’t grasp, it’s the ‘knowing-feeling’ that I cannot execute or bring to life these fundamentals that cause my brain to short-circuit, and thus my Being rejects the entirety while in the process of imploding. Continue reading

moonlight

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Mid-Autumn Festival is special to the Chinese. ‘Mooncakes’ 月餅 and lanterns are de rigeur at gatherings with family and close friends. We celebrated on Friday evening with a meal at the East Coast Lagoon Food Village. I usually detest crowds and food smells all jammed into one space, but this place is out in the open, the smells are somehow freshened and the noise is carried away by the sea breeze. Dogs are tolerated here too, if we sit at the outer edge and keep them leashed.

I am happy with this exemplification of ‘family’ – mum, my baby sister, her husband, her husband’s youngest sister and hubby, and we were joined by the latter’s daughter and boyfriend too, which was a bonus. They are foodies, so we always have great food, and I don’t have to even think about what to order because that is always well taken care of. Oh yes, and I get to eat delicious crab claws all shelled and presented neatly with minimum fingers-to-crab-shell contact too! My brother-in-law always shells it for us. No sensory assault, no mess, just great taste! Continue reading

memory

JS Bach Invention 1

J.S. Bach Invention 1 in C major, BWV772

I am slowly retraining muscle memory. It’s only half true that if you’ve learned something well in childhood, you’ll not forget it ever. Of course, I can still read music notes, of course I can still ‘play’ the piano in my mind, but seated in at the keys, J.S.Bach’s Invention 1 in front of me, a piece I mastered as a young piano student, my fingers just stolidly and stiffly refused to respond according to how I remembered it in my mind. In fact, I could not muster enough strength to last more than an hour before my fingers, wrists, shoulders and back began to protest vehemently.

Of course the arthritis is a key factor, but the truth is, I had forgotten. My muscles had forgotten the rhythmic precision, the measured force, the intensity of focus, the phrasing, embellishments, the whole body coordination, the mental concentration and the holistic stamina required for something that appears so simple and straight-forward.

Nevertheless, the sheer pleasure that takes over the corporeal being when engaging every part – internal and external – in this innocuous activity is indescribable.  My mind and body, all my senses, are activated in a fulfilling and vigorous way that no other art form does for me. Even though ‘making’ and creating my physical installations bring a great deal of satisfaction, for me, nothing compares to the space I am in when I communicate with music and music with me. There is a mutuality that exists beyond the audible, the vibrations, that which is unheard but sensed throughout the body,

I have been gifted with yet another embodiment of Clement Space. And this time, at last, I am able to share my practice ‘sphere’ with mother. I used to recoil from sharing this intimate space with anyone, it would literally send me into meltdown should someone invade or interrupt my practise, and I would only happily share when I feel ready to ‘perform’. Now, however, the process is freed up to include and embrace external entities as guests inside what was once sacrosanct. Is this “overcoming” an autistic trait? I do not see it that way. There was nothing wrong with my not wanting to share what was sacredly private, and there is also nothing wrong or right with my now allowing a very select few to enter this space. It is merely how I have evolved, without conscious or forced effort. That is not to say that all and sundry are welcome, but more a symbolic gesture that perhaps mother is at last someone that I have allowed into this space in this way.

And I am glad for it. For mother, mostly, but also for myself.

clement riffs

 

It is 6.40am as I start typing this. The churning, heaving, hurling and caterwauling, the uneasy prancing around Neuronormative plastic tulips, swimming against the tidal cacophony of insidious agenda and spiteful fear mongering, all while valiantly maintaining expert façade of sangfroid-with-edge. What a week it has been!

The highlight ‘achievements’ of the last seven days?

Rid myself of the Millstone of Inefficiency in a project I am working on – nothing personal, I am not here to make friends, I am here to work and I find it hard to tolerate hindrance.

Emerged from the miry bog Swimming with the Hogs, made a firm decision to take control and issued forth my Ultimate Ultimatum – it’s my terms or nothing at all, I’ve allowed them to snuffle in the mud for too long, time to move ahead or leave.

Not melting down while dealing with Belligerent Entities must of course count as the highest accomplishment of the week. Very proud of this Autistic Bunny. (But of course, I had help from my Canine Angel.)

Now, for some clear lines, like fluid aromatic ink on smooth silk, here’s Chick Corea and Bobby McFerrin with a song I love (I learned to play the Autumn Leaves by ear as a wee lass of seven and it is still one of my favourites). Sitting with my Beloved, watching the light slowly seep into the dark sky as a new day asserts itself upon our consciousness.

I am so glad I took the good advice of my Fine Arts Professor (who has now become a well loved friend) during my undergraduate days and chose music as my major. Now that I have made the transition into art, music is still a Clement Space that I return to for sustenance and strength.

A Clement Sunday to Every Bunny!

lo-hei !

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(Online Exclusive – click here.)

lo-hei” – A toss for Happiness, Blessing, Abundance, and, well, all things good! This is the Cantonese term that describes a tradition begun in Singapore of sharing a large salad and raw fish / seafood dish called yusheng“, usually during the Lunar New Year. Everyone joins in with gusto, quite a bit of vim and vigour, to stir and toss the salad into a blended mix. The dish is delicious, a delightfully composed orchestration of lightly piquant, sweet, savoury and ‘umami’, the dish often includes ‘auspicious’ sounding fresh vegetables, pickles, raw fish, highly prized seafood, such as abalone, crab, shrimp/prawn, bound together with a sweet-sour sauce.

This Autistic Bunny is a foodie, and how absolutely, fabulously fortuitous to have a brother-in-law who was a top professional chef and now a food scientist. Never a dull meal when we’re with this chap. Always happy tummies too! Well, folks, the Lunar New Year is almost upon us, so it’s time for food-tasting, reviewing and just enjoying the goodies galore. Some of the dishes are new concoctions and others are variations on a traditional theme. This year, my brother-in-law has developed a new and superbly tasty variation of the traditional “yusheng” salad dish, and we’ve had the good fortune of several previews, in the quest to make it just perfect. Continue reading

a clement Christmas

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Clemency is hard to find. Clement Space is an ongoing quest. As is the Endeavour of Empathy.

Looking back, contemplating crashing fortissimo and lifting appoggiatura, soul crushing depletion and spiritual strengthening… Artaud and Wagner, humour, beauty, gritty determined ‘dogliness’… Lucy has once again carried me through yet another year with her gentle, wordless steadfastness of spirit and embodied grace.

It’s Christmas Eve. I recall with gratitude and fondness, the most precious Christmas gift from our sojourn in Paddington, Sydney. It was 2013, a quiet Christmas Eve, early morning when the summer air was still cool and crisp. Those roses, tossed out by someone, still fresh and beaming with a brilliance I’ve never yet seen nor witnessed again in a bunch of flowers. Put into my hands with a gruff greeting, from our friend Michael, an eccentric old man who lives in a rickety van. We met when Lucy and I were out walking, Lucy chose to say hello to this elegantly dressed solitary figure, smoking and reading the newspapers on the park bench just by our grass patch we call “dog patch”. I miss Paddo. I miss our neighbourhood, our friends, and I think of them often. Especially Michael. I hope he is well. One can never be sure. Michael comes and goes. Nobody knows where and when. I don’t know if I’ll ever see him again. He was choking back tears when we last said goodbye, too proud for a hug, we did not even make eye contact. But I hope he knew how much we would miss him.

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This Christmas Eve, Lucy and I are ‘home’ with mum, my baby sister and brother-in-law, their two little furry children, and our helper Nula. Lucy has over-eaten again, too many treats and a giant lamb bone from her aunt who thinks she is too thin. (Though I keep reiterating that Lucy is a Greyhound, they are naturally lean.) We are waiting for Christmas Eve dinner – yet another private gastronomic feast by my amazing brother-in-law. The over-fed Canine Angel is asleep in bed, next to me. I can hear her rhythmic breathing, and she opens her sleepy eyes occasionally to check on me.

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I reflect on Christmases long past, and I realise how peaceful it is now. Without any more pomp and ceremony, no more need to dodge snide remarks and undercurrents of bitchery or witchery, no competition for whose gift is the most expensive or who has achieved the most success in the year. Those are now distant memories, and juxtaposed with our recent ones, they stand as reminders of how much goodness has come along since I walked away from all that mire.

We had our pre-Christmas dinner with extended family and friends last week. It was a very merry one, noisy and overloading but not at all emotionally or mentally exhausting. A pleasant, happy, kind of overload. And, of course, the food is always delicious – how could it not be, with a top professional chef and two F&B professionals in the party?

This year, I slogged away all week to finish my handmade gifts to mum, baby sis, Mini-B and Tiny-T. A welcome restfulness of spirit and blessedness of mind – taking time away from a surfeit of advocacy work, campaigning and proposals – just to touch, feel, and flow with the patterns and variations so clement to the senses. ‘Making’ is a beautiful activity for me, calming and restoring. I’ve named my jewellery line “LaLaLouBelle” – after Lucy and my childhood nickname for baby sis. Every piece is made up of vintage and antique components, collected through my early years of avid travelling or handed down to me from mum and granny. Each one a narrative of love and filled with meaningful history.

Oh, yes, and Little Mini wee-wee-ed on Lucy’s bed yesterday, so I’ll have to buy Lucy a new bed. Mini is a spunky little (fat) button, with a penchant for Lucy’s bedding.

We’re all set! I’ve put up a miniature tree, with tiny lights and trimmings. Our presents are all ready for the ritual tonight. – we open ours on Christmas Eve.

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A peaceful and clement Christmas Eve wish to all from Lucy and me!

Autistic Thriving @TEDx Pickering

 

“Autistic Thriving” – Dawn-joy Leong & Lucy Like-a-Charm. (Captions available on Youtube – please turn on cc option.)

Apologies for not posting this earlier.

“Just what you being made ‘aware’ of? And where are the Actually Autistic voices in this grand cacophony of opinions and interpretations?”

vivification

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Colour, smell and clever arrangement make food more inviting, often enhancing the actual taste itself. Texture also plays a big part. Crunchiness can add a delightfully cheery  dash to even the most ordinary of foods. Of course, the chemical transformations that occur when foods are cooked in certain ways and combined never cease to fascinate.

Food has become more an everyday indulgence than a lively challenge since returning to home ground. In many ways, I miss the latter days, though I have not ceased being grateful and appreciative for each morsel I imbibe. Perhaps the weather here – the humidity – makes everything taste less defined, and having such abundance has dampened the enthusiasm of discovery or provocation. I also cook a lot less than before, as cooked food is cheap and readily available here in Singapore, and my dear foodie-chef brother-in-law either takes us to new places on investigation missions, or he brings his expert professional culinary skills to our table at home.

I do still like to notice the little tiny interplay of colour, tonality, texture, smell and the way each component communicates with the other, like small musical pieces or miniature dances unfolding inside my bowls, plates and dishes. Cutlery interacting with these morsels form a personal and even intense connectivity and communication, sometimes intimate in isolation, and other times part of a larger conversation with the human sensory realm.

It’s Friday yet again. I do miss our weekend noshments in Paddington. There was an aura of preciousness and bonhomie that remains unique to that particular juxtaposition of company, time, place, space and situation – an what conversation! There can be no replication.

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What do a black Greyhound, multi-art expression, and food have in common?

They are all close to this Autistic Bunny’s heart.

Autism advocacy. Disability advocacy. Trying to throw open the windows of tightly closed minds. Mistaken as threat. Tokenised and patronised. Writhing and spinning round and round, ploughing the miry fields of repetitive human social-political gyrations. Trudging through the cesspools of normativity. Wiping away the spit of jealous competition, meandering through lies and subterfuge. The burden of participation in humanity’s Theatre of Absurdity can wear the trembling soul down, and the spirit is too easily crushed and fragmented under pounding cacophony of noisome people-ing.

Continue reading