teamwork

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It isn’t true that autistic people do not know how to work in a team. We just need clear instructions about what is expected of us, and consistency in interactions. The autistic person is just as willing as any other to perform as a team, it’s just that the autistic mind functions somewhat differently, so better understanding all round is necessary.

Today, I was reminded again how amazing the people I work with really are. Continue reading

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building clement space

Work in progress…

It’s been more than a week battling this cold and cough. My voice is all but gone. I sound like a constipated frog (do frogs really constipate?). Been through the dramatic works, the wailing, flailing, fainting and vomiting stuff etc, and now finally on the mend. Still coughing alarmingly – feels like the guts are all going to spurt out at some point or other – and noticing some pretty aghast looks being thrown my way, through the tears in my eyes while attempting to blow my nose. Too much multitasking, being sick is unpleasant for anyone, but being sick with hypersensitivity cranks up the ‘horrid’ volume manifold levels … and over and over. I am missing my Lucy. A lot. Clement Space was inspired by Lucy.

Nevertheless… I have been building clement space… in little ways, struggling valiantly, and in the more ‘official’ manifestation, of course, the exhibition. The show must go on, and so it shall! Continue reading

clement space in the city

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I spent the last few nights and days in this sofa, positioned right next to the loo. For safety, because I nearly fell down the winding stairs connecting to the loft bed. And for convenience, in case I had to throw up. A good thing I am short, but still, I have not laid down properly in a bed, stretched out, for this entire time. Continue reading

amplified senses

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What happens when an autistic person with hyper senses becomes unwell / sick? Do those hyper sensory antennae suddenly shrink to ‘normal’? Nope. They are amplified still, as ever, if not even more so. The pain is compounded, and searing terror all the more gripping.

Staring into my delicious bowl of hot potato and leek soup this morning at the Arthouse Kitchen, after an entire night spent retching into the loo, I felt a sense of relief – just simply because I was no longer trapped inside the swirling sphere of excruciating agony. Last night, it was as if time had snapped its back and was lying on the ground in a crumpled heap, sneering at me each time I convulsed, perspiring profusely like a tap at full blast. Not a pretty sight. Not one I’m happy to allow any to witness, so another episode came and went, with only the cosmos as voyeur, and my paltry words to record. I don’t want or need anyone to hold my hand during the ordeal, no thank you, it adds to the distress, really. Yet, being all alone in the cold, stark artist’s studio while teetering on the brink of physical and mental breakdown, was admittedly most frightening.

I couldn’t swallow more than 6 spoons of the goop, no matter how tasty. The throat is inflamed from all the coughing and sputtering. Sorry, Massimo. Please don’t take it as an insult to your culinary offering.

It was a comfort to sit in an old favourite and familiar space. Though with a sad twitching tingling feeling, because that was one of ‘our’ places to be – Lucy and me.

Takeaway: Autistic hyper senses = amplified horror and pain when unwell. Spare a thought for us, we’re not being dramatic. In fact, we prefer to hide inside our excruciating terror. But being nearby and knowing that you are somewhere does help a bit, if only to call an ambulance if needed.

Diagnosis Disruption: Debunking the Myths of Non-verbal Autism

I couldn’t have put this better! Thank you, Matthew.

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Autistic individuals are the true autism experts. Matthew Lager’s TASH Talk debunking the myths of non-verbal autism is a must read for anyone who has an autistic child or works with autistic individuals. Matthew uses a letterboard and keyboard to spell to communicate. He prepared this presentation for the 2016 TASH conference with his mother over a several weeks. Due to the 10 minute time limit of the TASH Talk, Matthew’s speech was read aloud for the presentation with spelling closing remarks live. Matthew’s goal is to challenge people to rethink autism and understand the capabilities of people who have been labeled as “low functioning”.  ~Elizabeth & Matthew  

Matthew

Thanks for letting me speak today. Thanks to TASH for including me and for your commitment to advocating for an easily dismissed segment of society.

I am going to share my experience of being erroneously mislabeled as low functioning and of…

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more lessons with Lucy

We are almost there. It has been a flurry… a dizzy tizzy tipsy trippy scary one… anxiety hitting the roof and splotching everywhere now… getting ready for… The BIG Anxiety festival!

Preparing the final bits to go… and still learning about Clement Space from Lucy Like-a-Charm.

See you all there in Sydney!

Happy Dog Day

Lucy Like-a-Charm - Sonorous Repose 2015

Lucy Like-a-Charm – Sonorous Repose 2015 by Dawn-joy Leong

Today is International Dog Day. I celebrate with Lucy our differently embodied existences. Her canine Being is precious to me. Lucy is not “just a dog” – she is a dynamic and sonorous entity to who has not only saved my life on many occasions, but continues to enhance, enrich my realm with pulchritude worth far more than any human is able to provide. Thank you for being a dog, and so much more than my humanity can be. Lucy Like-a-Charm, I love you.

arigato

I love Japanese cuisine, especially the rice, sushi and sashimi. My beloved brother-in-law now works in research and development at a large Japanese food company, and he takes us all out for a meal at least once a month at one of the many Japanese restaurants owned by the company. “Arigato” is the Japanese expression for “Thank You.” I am so fortunate! Continue reading

accommodating Self

 

Yesterday afternoon, a friend took me to a little nooky cafe, tucked inside an industrial estate. A former hardware shop, the entrance decorated with eclectic vintage clutter served as a thematic introduction to the atmosphere within. As soon as we pushed open the creaky door, I felt a draft of musty, humid, cool air blow directly into my face, then wrap around me like a nebulous mouldy snake. My skin tingled, as my olfactory senses picked up the various miasmic odours emanating from each visually charming piece of history on display.

The waiter ushered us towards the back. Slipping within a split second into a bubble of wordlessness, I followed obediently, semi-somnambulant, my sensory system already engaged in a (routine) contrapuntal wrestling match with the onslaught of smells, sights, and sounds. As we were about to sit down at the allocated table, speech suddenly returned, and words fell out of my mouth like marbles, tumbling down and bouncing sharply against the concrete floor.

“I don’t want to sit here, it smells funny. I don’t like the smell here.”

Continue reading

Lucy creates clement space

Photograph description: Lucy Like-a-Charm creates Clement Space wherever she goes. The above three photos show how she appropriates her Bichon-poodle cousin, Bizcuit’s, bed, which is a tad too small to contain her massive Greyhound body. In the first photo, she tries to pour into the bed, but her Greyhound butt falls off the edge. In the second photo, she lays her head down, she decides that she is content, and settles down for a snooze. The third photo shows Lucy sleeping, butt on floor, legs and head on the bed.

Lucy is a major influence on my concept of Clement Space, especially the idea that we can create mental and physical spaces of grace wherever we may be. Momentary respite. A place in which to repair and replenish sensory equilibrium.

Sometimes, to the casual observer, it may look awkward, seem uncomfortable even, or appear bizarre. However, Clement Space is ours, it is intimate, and we should feel safe to own it.