About bunnyhopscotch

Ph.D is done, Lucy and I need a new wheelbarrow... but we're still flipping pages of imagination, making splotches, humming in and out of tune, dancing around polyrhythmic-chromatic-pandiatonic mental fires, flying and falling, meandering in and out of discombobulation, gazing at pulchritude, picking up sound waves, stroking, caressing, embracing and learning new ways to see. What more could anyone wish for?

embrace

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Change can and does happen. Hope is not always just a frilly fantasy. Sometimes, even after one has given up and walked away, change unfolds.

Many years ago, I walked away from a connection with an ‘autism mom’. She wasn’t the typical, aggressive mom-crusader that you see in online mom-forums. She was always private about her woes, but nevertheless, at the time, so full of her own grief and struggle that she was unwilling to hear whatever I had to say.

Our paths crossed again recently. Her autistic son is an adult now. The struggles have been fierce, tumultuous, and the future is still shaky and uncertain. Yet, I see an acceptance, and embracing of her child, and a fierce loyalty and determination to support him, that I never saw before. Continue reading

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teamwork

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It isn’t true that autistic people do not know how to work in a team. We just need clear instructions about what is expected of us, and consistency in interactions. The autistic person is just as willing as any other to perform as a team, it’s just that the autistic mind functions somewhat differently, so better understanding all round is necessary.

Today, I was reminded again how amazing the people I work with really are. Continue reading

building clement space

Work in progress…

It’s been more than a week battling this cold and cough. My voice is all but gone. I sound like a constipated frog (do frogs really constipate?). Been through the dramatic works, the wailing, flailing, fainting and vomiting stuff etc, and now finally on the mend. Still coughing alarmingly – feels like the guts are all going to spurt out at some point or other – and noticing some pretty aghast looks being thrown my way, through the tears in my eyes while attempting to blow my nose. Too much multitasking, being sick is unpleasant for anyone, but being sick with hypersensitivity cranks up the ‘horrid’ volume manifold levels … and over and over. I am missing my Lucy. A lot. Clement Space was inspired by Lucy.

Nevertheless… I have been building clement space… in little ways, struggling valiantly, and in the more ‘official’ manifestation, of course, the exhibition. The show must go on, and so it shall! Continue reading

clement space in the city

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I spent the last few nights and days in this sofa, positioned right next to the loo. For safety, because I nearly fell down the winding stairs connecting to the loft bed. And for convenience, in case I had to throw up. A good thing I am short, but still, I have not laid down properly in a bed, stretched out, for this entire time. Continue reading

amplified senses

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What happens when an autistic person with hyper senses becomes unwell / sick? Do those hyper sensory antennae suddenly shrink to ‘normal’? Nope. They are amplified still, as ever, if not even more so. The pain is compounded, and searing terror all the more gripping.

Staring into my delicious bowl of hot potato and leek soup this morning at the Arthouse Kitchen, after an entire night spent retching into the loo, I felt a sense of relief – just simply because I was no longer trapped inside the swirling sphere of excruciating agony. Last night, it was as if time had snapped its back and was lying on the ground in a crumpled heap, sneering at me each time I convulsed, perspiring profusely like a tap at full blast. Not a pretty sight. Not one I’m happy to allow any to witness, so another episode came and went, with only the cosmos as voyeur, and my paltry words to record. I don’t want or need anyone to hold my hand during the ordeal, no thank you, it adds to the distress, really. Yet, being all alone in the cold, stark artist’s studio while teetering on the brink of physical and mental breakdown, was admittedly most frightening.

I couldn’t swallow more than 6 spoons of the goop, no matter how tasty. The throat is inflamed from all the coughing and sputtering. Sorry, Massimo. Please don’t take it as an insult to your culinary offering.

It was a comfort to sit in an old favourite and familiar space. Though with a sad twitching tingling feeling, because that was one of ‘our’ places to be – Lucy and me.

Takeaway: Autistic hyper senses = amplified horror and pain when unwell. Spare a thought for us, we’re not being dramatic. In fact, we prefer to hide inside our excruciating terror. But being nearby and knowing that you are somewhere does help a bit, if only to call an ambulance if needed.

Diagnosis Disruption: Debunking the Myths of Non-verbal Autism

I couldn’t have put this better! Thank you, Matthew.

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Autistic individuals are the true autism experts. Matthew Lager’s TASH Talk debunking the myths of non-verbal autism is a must read for anyone who has an autistic child or works with autistic individuals. Matthew uses a letterboard and keyboard to spell to communicate. He prepared this presentation for the 2016 TASH conference with his mother over a several weeks. Due to the 10 minute time limit of the TASH Talk, Matthew’s speech was read aloud for the presentation with spelling closing remarks live. Matthew’s goal is to challenge people to rethink autism and understand the capabilities of people who have been labeled as “low functioning”.  ~Elizabeth & Matthew  

Matthew

Thanks for letting me speak today. Thanks to TASH for including me and for your commitment to advocating for an easily dismissed segment of society.

I am going to share my experience of being erroneously mislabeled as low functioning and of…

View original post 1,426 more words

more lessons with Lucy

We are almost there. It has been a flurry… a dizzy tizzy tipsy trippy scary one… anxiety hitting the roof and splotching everywhere now… getting ready for… The BIG Anxiety festival!

Preparing the final bits to go… and still learning about Clement Space from Lucy Like-a-Charm.

See you all there in Sydney!

Happy Dog Day

Lucy Like-a-Charm - Sonorous Repose 2015

Lucy Like-a-Charm – Sonorous Repose 2015 by Dawn-joy Leong

Today is International Dog Day. I celebrate with Lucy our differently embodied existences. Her canine Being is precious to me. Lucy is not “just a dog” – she is a dynamic and sonorous entity to who has not only saved my life on many occasions, but continues to enhance, enrich my realm with pulchritude worth far more than any human is able to provide. Thank you for being a dog, and so much more than my humanity can be. Lucy Like-a-Charm, I love you.

lead puffs

incessant inundation

weight of the world

mired in fetid swirl

demanding bits bobs

flotsam jetsam

to you

but me

pieces of my body

painfully sliced

piece by piece

shred by shred

excruciating agony

but no

have to

look here

look there

no, this

oh, that

chat, chat, chat

 

smile

wave

read this

listen to that

what do you think?

any advice?

here’s cake

eat

there’s steak

feast

be grateful

be happy

be cheerful

be merry

but most of all

BE VERY VERY VERY CLEVER

you’ve a PhD

… right?

 

all I want to do is just sleep

arigato

I love Japanese cuisine, especially the rice, sushi and sashimi. My beloved brother-in-law now works in research and development at a large Japanese food company, and he takes us all out for a meal at least once a month at one of the many Japanese restaurants owned by the company. “Arigato” is the Japanese expression for “Thank You.” I am so fortunate! Continue reading